News
Approved is approved.
Posted on May 5, 2025
Today, Little Hercules Foundation, joined by 57 patient advocacy organizations serving rare disease patients and their families, sent this letter to Independence Blue Cross Blue Shield (IBX) regarding their policy excluding coverage of all treatments approved via FDA's accelerated approval pathway. Thank you to our fellow rare disease advocates, including many DMD organizations, that joined our efforts to change this dangerous policy. Approved is approved.
Expert Physcian Testimonies on SRP-9001
Posted on May 8, 2023
Hear directly from the SRP-9001 PI's expert views on treatment effect in their patients.
Duchenne has long been a part of our family's past. But we don't have to unpack our things and live there.
Posted on June 26, 2018
Read our latest blog post by one of our Personalized Access Team (PACT) Managers, Amy Aikins, whose long family history with Duchenne inspires her to help others, including her son, live their best lives by helping them get what they need.
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